resources

This booklet produced by Down Syndrome Scotland is full of practical ways to create a "dementia friendly" home as well as advice for changing the way we interact with a person living with dementia to enable them to feel calm and secure, despite their declining skills.

This document guides a person through a series of questions to help them make choices about the type of medical treatments they prefer, their end of life wishes, who they want to speak on their behalf if they cannot and what the want to happen after their death. It is written in language that is easy to understand.

This comprehensive booklet provides a detailed guide on what to expect and how best to support a person living with dementia through the early, middle and late stages of the disease.

If you are a caregiver in the San Francisco Bay Area supporting a person with Down syndrome and dementia, this monthly support group is a great way to get support from others and to share resources and advice.   They meet on the 3rd Thursday of every month from 6:00 pm - 7:00 pm.  Contact Marianne Iverson at 925-362-8660x103 or marianne@dsconnection.org to join.

NTG (National Task Group on Intellectual Disabilities and Dementia Practice) offers a variety of resources for families and professional, including their Early Detection Screen for Dementia (EDSD).  This document is particularly useful since most standard screening tools are not valid for adults with intellectual disabilities.  For more information go to: www.the-ntg.org